Sussex ME/CFS Society: All About ME
The Sussex ME/CFS Society is the registered charity that informs, supports, and represents many of those suffering from the illness.
Myalgic encephalopathy (ME) or chronic fatigue syndrome (CFS) that can sometimes follow a viral infection or trauma is classified as a neurological disorder and affects nearly 4,000 adults and children across Sussex.
ME/CFS guidelines are available for the medical profession and some NHS specialist services are operational including those in Sussex that are helping many patients towards better health. Symptoms include profound physical and mental fatigue, concentration and working memory difficulties, muscle pain, sleep and mood disturbances along with gastric problems. The symptoms, that vary and fluctuate, can be exacerbated by over exertion or stress. With good management, many patients can significantly improve.
The Sussex ME/CFS Society is the registered charity that informs, supports, and represents many of those suffering from the illness. We also have people affected by fibromyalgia and long Covid amongst our membership. Our members are affected to differing degrees with a good number being virtually house-bound and in need of care. We work collaboratively with NHS services and the Brighton and Sussex medical school who are carrying out research into the condition.
For more information, CLICK HERE
Scene was founded in Brighton in 1993, at a time when news stories about Pride protests were considered radical.
Since then, Scene has remained proudly independent, building a platform for queer voices. Every subscription helps us to report on the stories that matter to LGBTQ+ people across the UK and beyond.
Your support funds our journalists and contributes to Pride Community Foundation’s grant-making and policy work.
Member discussion